Breaking free of the cotton candy web of denial...

**elephant** · 03-11-2010, 05:24 AM

I have United Healthcare and I never asked to see a Wegs Specialist.... I just set up the appointment and saw the WG specialist ( no pre cert). I go to Cleveland Clinic in Ohio. I see a local Rheumy also. I think once you establish a Wegs Specialist they will be able to help you. Like Sangye said, if your having symptoms of CNS Wegs ..your local Rheumy should be making calls to the Wegs speicialist stat.

**Sangye** · 03-11-2010, 05:33 AM

Yes, stat stat stat stat. Lola, you've seen me do some major nagging, but it's nothing compared to what CNS Wegs will bring out of me.

**Jack** · 03-11-2010, 08:53 AM

Originally Posted by Sangye

With Wegs we can never think "Nah, it's so rare it won't happen to me."

I have a private little saying following my experience with Wegs, "Things are never so bad that they can't get worse!"
Sorry. That wasn't very positive was it?

**elephant** · 03-11-2010, 09:00 AM

I remember going through nursing school and reading everything about the body ( disease's). Everytime I finished that chapter I wonder if I had that disease....now I am wonder hmmm...do I have CNS Wegeners too???

**Lightwarrior** · 03-11-2010, 10:02 AM

Originally Posted by elephant

I remember going through nursing school and reading everything about the body ( disease's). Everytime I finished that chapter I wonder if I had that disease....now I am wonder hmmm...do I have CNS Wegeners too???

LOL,,, it is a nursing curse. I read all of the CNS posts and see a bit of myself in each one

**moyan** · 03-11-2010, 11:26 AM

Can't find the abbreviations, what is CNS?

**Sangye** · 03-11-2010, 11:39 AM

CNS= Central nervous system (brain and spinal cord)

Jack, I thought your comment was hilarious. I always answer people truthfully when they ask. The longer I live with Wegs the less I care if they view me as negative. Since I stopped caring so much, I have far fewer people judging me (outwardly, at least!). Whether they see me as positive or negative, it's a reflection of their own mind.