hi everyone. i think some of you may have heard about me before now im the person BARON talks to you about . although i have never posted a i read all the post daily . many i can identify with and have taken a great deal of useful advises onboard the reason why i say what a week at home again waitng for result of bone scan and kidney biopsy (by the way jack u were right it did hurt !!!)
i then go and get a chest infection on top
as you all know that means more tablets and to add to an inhaler managed to go to daughters birthday party for a few hours felf like a beached whale ctx and steriods onboard and now decided i need tablets to slow heart down to add to blood pressure tabs they make hands tremor !!!
headache back buzzing in the ears and i wont start on the crusting in the nose but as doug told BARON its my new normal he also told you that i see this disease as a jigsaw puzzle with all the pieces mixed up guess they feel mixed up and upside down at the moment
dont know what i would do without BARON let sme shout and yell understands why there nothing in the fridge and accepts when IM ASLEEP AGAIN something im good at during the day and not so good at night
my biggest plus is that i have the best wg consultant on my case i have had him since the beginning saw through methro treatment which didnot work and is now helping with ctx treatment have daily contact with his secertary or himself if needed and have now got gp on board who already has a wg patient and luckily five mins from home so i have all my bloods done at the surgery and hospital only 40mins away
anyway i have talked enough and as i say to BARON the someone worse than me oout there take care of youselves hope to speak to you all again soon DEE x
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