I don't know what part of the forum to post this question - it's actually not GPA related but I thought that some of you might have info about these procedures.
When looking for renal granulomas on a CT scan they found a benign angiomyolipoma (blood, muscle, fat) on my kidney (measures 5cm x 4.7cm X 7 cm) and its larger 'than allowed'. It is not GPA related. It displaces my kidney a bit and has potential for bleeding into my kidney. So they want me to see a urologist in the next 2 weeks and have further tests. It will need to either be surgically removed or have a coil put in it to cut off its blood supply (embolism is the term I think) and shrink it. But they don't want to do that while I'm so immune suppressed. Just got GPA diagnosis 8/1/16 and am on 60 mg prednisone and have had 2 ritux infusions now. So it'll be at least a few months or more I believe before this is treated. I'll know more when I see the urologist. It has not affected my kidney function thankfully and I do not have granulomas or GPA involvement in my kidneys.
I realize I'm jumping the gun a bit, but I read that an angiomyolipoma over 4 cm in size presents a risk for bleeding which could be very sudden and very dangerous. I don't know what the doc is going to recommend regarding these two procedures for getting rid of this mass but I wondered if any of you had either procedure or knew much about risks/ outcomes.
thanks
Gab
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