Best of luck to you, Victor and Keith, if you pursue this further, and you, too, vdub, if it becomes an issue, which I hope it doesn't!
Best of luck to you, Victor and Keith, if you pursue this further, and you, too, vdub, if it becomes an issue, which I hope it doesn't!
Anne, dx'ed April 2011
Victor, good luck from me as well... Wish you the best... Deb...
Live,love,and laugh...
The trach is below my vocal cords. I speak better if I plug with my finger or a passy-muir valve or cap. The good news is there is no pain associated with the trach once it is established. Here is a photo of what it looks like. Best of luck to you
Trach.jpg
Blue, I never know what to call you! And this rhymed also... Just wanted to thank you, for this photo! Really kind of you, to share this with everyone... Good for you! I wish you the best also... Victor, again, best to you... Debra...
Live,love,and laugh...
I thought that's what it was, but wasn't sure. Thanks for posting the pic.
Wegener's (GPA )- Apr10, Granulomatous Hypophysitis - Apr10, Diaphragmatic Paralysis - Feb16, Bradycardia - Dec16, Fibromyalgia - 2017, Hypoparathyroidism - 2017. (my story)
Forum Member Map -- world map for you to put a stickpin of where you are located....
Blue, I gotta tell you, yes yet another rhyme! Since I have mouth involvement, and my throat feels weird a lot, a long with a voice change, I wasn't even aware of, till a family member told me, this has been a huge fear for me, but seeing you, and this, kinda changed that... Thank you so much for that! And again, thank you for sharing this with us... All the best, Deb...
Live,love,and laugh...
I have seen the ones where people have to put a machine to their throat to talk and it works off of vibrations ?? but I believe that is when there is no vocal cords. So I quess that is totally different. This looks like it would easily get infected being open like that. Very interesting. I truly hope all works out for all 3 of you guys. Vdub are they thinking of doing this to you as well ?
Life isn't about how you survive the storm, but how to dance in the rain !
I did have some issues with infections at one time but haven't had that problem for about 2 years. I do have a filter that I put on to keep moisture in my lungs and keep dust , pollen or other stuff out. Yeah my vocal cords are not damaged so that is a blessing
Blue, you're also an inspiration! Thank you, again for sharing this, and making it more real for me, and strangely enough, removing some of my fear... Not quite sure why? But it did, nevertheless... Deb...
Live,love,and laugh...
It took 3 trips to the emergency room telling them I couldn't breath and every time I was told they couldn't find anything wrong. My ENT did the scope up my nose and to my trachea and I was told I was 100% obstructed. I was given a 50/50 chance of survival but the emergency surgery at 2:00AM pulled me through and after that I got my diagnosis. Keep up the faith and best wishes!!
Bookmarks