Originally Posted by
annekat
Perhaps your cancer surgery triggered it, if you were already pre-disposed or already had it smoldering but didn't know it. And I didn't mention my giant antibiotic resistant ear infection, in both ears, that stands out as the beginning of what probably could have been dx'ed as Wegs if anyone had thought of it. A big ear infection at the beginning has been reported fairly commonly on here and I wonder if you had one, too, Tom.
The Oncologist thinks there may be a connection. He says that because when they opened me to do the colon surgery, they found that the cancer had went thru the colon wall and adhered to my bladder! They had to call in a Urologist for the bladder but they couldn't take the bladder because I did not sign off on it and the wife had no power of Atty to authorize it.
So they took as much around the margins as possible to try and save the bladder.
After they found the bladder, he said they turned every organ in my body over and looked at it for more cancers while they were in there!
My diabeties flared up just after that, I started having the sinus problems, I felt the same fatigue leading up to my cancer dx!
I had to have a full flare up before they had an AH HA! moment.
My oncologist says he suspected Vasculitis earlier but because there was no real evidence to support it at the time that my insurance would not pay for the testing because it is a test that is prone to false positives while trying to dx it! So I had to have the flare up and the purpura and then he said it all came together like a puzzle!
After all was said and done, I found that I was not upset with the Drs for not finding it after about five years of complaints and being told that I had a radical surgery and it was expected that I would have problems but they chose to take them as they came!
Like you also, If they had found it earlier, I would have my lungs and maybe just localized to my sinus and ears!
I do 2 liters of 02, 24/7 !
I'm up beat about the whole thing but sometimes my lack of 02 brings me down but I get right back up after having my own little pity party as one thread is titled! Or sometimes my wife joins me but I try to keep to myself! She has been my rock though thru all of this!
Nobody knows how we got to the top of the hill. But since were on the way down, we might as well enjoy the ride!
James Taylor, Secret Of Life
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