I was going to start a new thread this morning but this one is right on point... I thought I'd been bitten by Mosquitos yesterday when dropping off my son at soccer camp on a field full of bugs. I got so itchy I couldn't help scratching my legs like crazy. Bought some afterbite (itch/bite cream) and put it on andd forgot about it until later. Then I saw my leg--the area that was the most itchy had ugly, raised purple splotches that look like they could be purpura. I took some photos and happen to be scheduled to see rheumy today so I'll see what he thinks, if I can even get him to look. He doesn't usually actually examine me or have me put on a gown, just chats with me in his office at his desk and checks out my hands. (?
). I've had hideous purple veins and been bruising very easily for some time now, but this is the first time it has seemed like a rash or skin condition. I'm totally bummed. This and the hair loss are the only two visible signs of the disease and for some reason (vanity?) they hit me very hard. I was in tears over this one last night. I used to have nice legs. Now I hate having to wear shorts or a bathing suit. Such a small problem in the grand scheme of things, but I can't help feeling sad about it. Oh, well, maybe it will get better. I'm worried that it's just another sign that my disease is not under control.
D.B., I hope your skin gets better with your infusion. It sounds hopeful that it will. Asking for it sooner as per Alysia's suggestion sounds like a good idea.
I have one question, if others have purpura or other rash from the disease, does it itch or did it start out with itching? I know this can happen from RA, which I may or may not have (could have been misdiagnosis of GPA or I could have both, hard to know). I'm also wondering if I did get bitten by Mosquitos and bruised from scratching them as I've been bruising very easily due to the prednisone. Argh.
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