Cindy
Earth is just a stopover and whatever you achieve there is only a small part of the deal. The Afterlife Of Billy Fingers
vdub, I just listened to that webinar and they didn't really have a whole lot of new info that we all don't already now but he did mention about arthritis that a soft massage ( not a deep one ) and acupuncture can help relieve pain. I didn't know if you ever tried that ?
Life isn't about how you survive the storm, but how to dance in the rain !
Hi vdub,
I am sorry for youpain is not easy to bear.
I think that you are right, that stopping the fight to change it, may help and make things easier. at least you don't have to suffer the anticipation and frustration, and going to appt. with docs etc.
rest and peace of mind are also kinds of meds.
does your new avatar have a story ? does it mean that your daughter is home ?
lots of hugs to you. I hope the pain will go away.
Alysia
dx 2008
Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
"You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.
I'm so picking up what you're putting down vdub. I'm also feeling the same but it has to do with being in doctor's offices, or labs or hospitals. I am supposed to be going for regular blood tests but I just said to heck with it. I don't remember when I had my last labs.
Funny that whole pred love-hate thing. It really is the best for the pain and I think that's a tell tale sign that the pain is inflammation related. If the pred helps your pain, then you're having inflammatory issues... or that's how I understand it. I could be wrong.... it's happened before.
As for tweaking the 'cocktail', I'm with you on that one 100%. My doc refused to do anything with more than one drug at a time and giving it enough time so that we see how changing that 'one drug variable' changes the whole picture. She doesn't want to mess around and tweak with more because then you don't know what it is that's causing the positive or negative changes in status quo. That makes a ton of sense to me from a scientific perspective. So you do what you're doing and then when you decide to tweak, do it one at a time.
Take care buddy and I hope your pain goes away. I hate pain, and I'm pretty sure you do too.
Alysia
dx 2008
Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
"You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.
I can relate to Marta's doing this. If she feels pretty good most of the time, is out skiing and living a full life, and is tuned in enough to her body to know if something starts to turn in a negative direction, at which point I'm sure she'd go in for bloods. My doc has never had me do bloods as often as some here, which has bothered me a little, but on the other hand, my bloods are always OK. The one time I was flaring, I knew it, and bloods were done which proved I was. Not saying people shouldn't get bloods regularly whether they are flaring or not, just saying some of us know our bodies really well and can make our own judgements.
Anne, dx'ed April 2011
Perhaps I will try the fan, maybe it will make my snoring background noise for Deb. Here's the old (young) me.
Dale
Dx Aug, 2009 Remission June 2010 until 8/1/2014
awww Dale, you are very cute![]()
Alysia
dx 2008
Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
"You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.
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