Anyone else haqve trouble sleeping?

[mikebonella]

I sure as hell do. Wondering if its common and why you think you cant sleep if you do have this problem.

[Jack]

I have no trouble at all in falling asleep, I can do it anywhere, anytime. The trouble is that I sleep for a maximum of 2 hours at a time due to the problem I have with coughing. I also tend to get up at around 5 in the morning for the same reason or some other problem.
My solution is that I grab a few minutes in a chair after everyone has left the house in the morning and then also have an hour laying on my bed after lunch.

[Sangye]

Are you on any pred, Mike? Even the smallest doses gave me insomnia.

After a life of never having a moment's difficulty sleeping (falling or staying asleep), insomnia was one of the first signs I had that something was wrong. Once the Wegs was diagnosed, the pred continued the insomnia, of course. In the past few months, the insomnia was creeping back, which was a sign to me that the Wegs was flaring. It's not a universal sign of active Wegs, though.

[mikebonella]

I have trouble falling asleep and once I do, I rarely get more than 5 hours unless I take a sleep aid (ambien). Im not sure how much of it is wg and how much of it is due to other stress in my life. Just curious if others had the same problem. I know that when I was on steroids, the sleeping was worse.

[Doug]

The older you get, the less sleep you get, primarily due to increased aches and pains. I don't know what aches and pains you have associated with WG (joint pain, cramps, breathing issues, etc.) but they alone can affect sleep quality and duration. Myself, knee aches (WG or non-WG ~ I don't know!) often thwart sleep. I recently read that people regarded to be in remission often have symptoms of an active flare. I believe it. I've often referred such pain to my doctor, but test results indicated I was still in remission. Go figure!

[mikebonella]

Yes, when the pain is bad, it definately affects sleep. For me, I just am not that tired at night though. Not in THAT much pain right now. My new doc said that just because the anca count is really low right now, that it doesnt necisarily mean that the disease isnt flaring.

[Luce]

I have trouble sleeping, I'm 25 and not in any pain from the Wegs.
I also don't stay asleep for more than 2-3 hours if I'm lucky and I put this down to an incredibly weakened bladder from the cyclophosphamide. I can go to the bathroom up to half a dozen times overnight and suffer a lot from cystitis-type feelings which can get really bad at times.

I also sleep really lightly which would normally frustrate me but it did mean that I actually heard the half-dressed, very drunk man that crawled through my front room window the other week! It was very warm overnight and we have a ground floor flat so left the window open - this guy saw it as an invitation to come in and take a nap on the couch!
My fiance was useless, he thought I was talking and fidgeting in my sleep as is quite normal for me and I thought we were being robbed. Not quite sure what came over me but I stormed into the front room and flicked the light on. A man in a t-shirt and underpants stared bleary eyed back at me and asked me what I was doing in his house!

That was a night to remember...

[GeorgiaInOhio]

haha, its 5:16am here. i woke up about 3:30. Gonna try to get in a few hours before my son wakes up. Ya, trouble sleeping, it sucks! Sorry, just had to throw in my 2 cents. BLAH!!! Stupid prednisone!

[jola57]

Hi Georgia, i think you will see that a lot of us are sleeping alone these days partly due to the prednisone nights. after 25 years it hurts to sleep alone but my hubby is a light sleeper and has to be in the OR at 7 am. I don't think he can tell his patients if he is not 100%, sorry my wife woke me up

[Sangye]

One of my dogs sleeps under my bed, directly under me. He's the one who "talks" and grumbles like an old man. I can always tell when I'm having a particularly rough night, when I hear him start grumbling down there. It's pretty bad when even your dog can't get some rest!