So happy to hear you're doing better, Anne. I agree, it's a good sign I made it up there... it's just chest pain, I've been through worse and I wasn't going to let that keep me from going.
Oh, and I love your new picture. So pretty!
So happy to hear you're doing better, Anne. I agree, it's a good sign I made it up there... it's just chest pain, I've been through worse and I wasn't going to let that keep me from going.
Oh, and I love your new picture. So pretty!
Nothing can break you; you are much stronger than you think... look at what you've already survived.
The map Phil mentioned... Is here WegMap I will be near Santa Cruz this fall. My son is in Livermore and we'll be down there visiting.
Wegener's (GPA )- Apr10, Granulomatous Hypophysitis - Apr10, Diaphragmatic Paralysis - Feb16, Bradycardia - Dec16, Fibromyalgia - 2017, Hypoparathyroidism - 2017. (my story)
Forum Member Map -- world map for you to put a stickpin of where you are located....
My aunt is here in Sacramento and just recently "presumptively" diagnosed. She just started her Methotrexate, Bactrin, Prednazone, etc. We are looking for people she can connect with, maybe a trip to the beach is in order! - Kristina
I'm curious where your aunt gets treated. I went to UC Davis and have explored the med school teaching hospital website to see what sort of vasculitis treatment is available. They have a Vascular Clinic, which is different than a vasculitis clinic, but does say that they are experienced in treating all forms of vasculitis, though they only mention the 3 most common ones and not WG. Then, their rheumatology clinic seems to be located within the Internal Medicine department, and autoimmune diseases are mentioned in addition to allergies and such. So I'm just wondering where does one in Sacramento or Davis go for WG treatment, short of going to the Bay Area, where there are top specialists. I no longer live there, so am just curious.
Anne, dx'ed April 2011
Bookmarks