Alysia
dx 2008
Here, in this forum, I have found my sweet eternal love, my beautiful Phil.. :
https://www.wegeners-granulomatosis.com/forum/threads/4238-pberggren-memorial-thread
"You are my sunshine", he used to sing to me... "you make me happy, when skies are grey" I still answer him.
Rest in Peace, my brave Batman and take care of your weggies from heaven, until we meet again.
Basically they froze scar tissue to get it to come free from the airway.
~ Bob
See above
My lung issue was all scar tissue in the left main bronch. On the bright side he said the damage was all older so nothing new from this latest round. Which I find a little weird as I had a bunch of breathing problems lately, but maybe I'm super-sensitive to anything in that airway now.
~ Bob
So after freezing they cut the scar tissue out?
Phil Berggren, dx 2003
No, as i understand it the tissue comes away from the Bronch similar to frostbite on fingers. They said they use this because laser ablation causes more damage and scarring in the long run with Wegs.
~ Bob
I'm gonna have to ask my new doc about this then.
Phil Berggren, dx 2003
Had a rough day this morning. Woke up and had lost all airway to my left side. Lung had a partial collapse so got to go back in for the second Bronch in three days. Mucus plug at the inflamation was the culprit. Feel a bunch better after they cleared it.
~ Bob
Yikes Bob..... How the heck did the doc get it out? Do you have a lot of mucus that comes up each day? Do you find it hard to cough it up? I find it hard to cough up the mucus each day. Today was a hard day. Spent 4 hours nebulizing saline and coughing trying to get out mucus plugs. I think most of my plugs are in the larynx and sit at the sides of the vocal cords, but I am not certain about this. If that was the case then they would be formed, most likely, from the mucus from the post nasal drip. I think I also get plugs from the lungs as well Because sometimes I feel something big coming up then when it hits the larynx I can barley breath, then it comes up and is a large piece the size of a marble or bigger.
Phil Berggren, dx 2003
I actually asked the Pulmy about the mucus thing. He said two things. 1) Inflamation can cause extra mucus, so that probably impacts us when flaring. 2) We constantly produce mucus in our lungs. We have cilia in our lungs that actively push the mucus up and out. But if you get airway damage the cilia get destroyed and mucus stops it's upward path and accumulates necessitating the coughing to clear it. That cleared up a ton for me
They had to go back in with another bronchoscopy. They tried to clear it with suction but that didn't work, they ended up using the cryo tool and getting it to freeze to it and yanked it out. They gave me less drugs this time so I was more aware of the process so it was a bit more unpleasant.
~ Bob
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