Hi Sas! Welcome to the international vasculitis forum.
Your question might be answered by the following organisations.
Vasculitisforum.nl | Ziektevanwegener.nl | Vasculitis.be | Forum • Forumoverzicht
FRIEDRICH WEGENER STICHTING - Welkom
I visited several meetings of patient groups in the Netherlands, and met many 'Weggies'.
Christine.
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