The humor is great - if slightly odd. I love it. Blame me for it. I have broad shoulders. Didn't someone once say that laughter is the best medicine???
Hi Pete, glad you found our group. It's good to hear that you're on the mend and making steady progress. I'm gonna be a wet blanket and interrupt all the jokes to say that since you're in Ohio, I recommend you go to Cleveland Clinic's Wegs specialists. Many people don't think it's important to get a Wegs doc involved, especially if they're doing okay so far with local doctors. But I can tell you from personal experience that just one complication can turn any case into a nightmare scenario and that won't be the time to go doctor shopping.
Alright then, my work here is done. As you were.
Oh, we've probably had enough jokes for now. Pete, you are lucky you are located near Wegs specialists. Many of us aren't so lucky.
Anne, dx'ed April 2011
Hi Pete Glad wgs hasn't effected you to badly still it has effected you in some degree , All the best xx
Diagnosed March 2001 ... WG Involvement - Ears . Sinus ( saddle nose) , eye ( blind Left )
currently on 5 mg Pred , Myfortex 6x360mg/d , Fosamax 70mg .
Tomorrow is the day, (seeing specialist) I know being positive is one of those things that will make my journey easier... But i am feeling sorry for myself, can't stop thinking how, or why, or what i did or should have done... having a hard time at work, where every one is grumbling about their work day, and they have no idea, what is going on in my life... I want to scream, and say, I wish i had ur ^&*&^ problems.. but no , instead i bit my lip from starting to cry, and i take my next call.... i am scared, and to deny that , It would be a lie///Sorry, i felt in any one has every been in my shoes, I am sure you've all tried them on once or twice... thanks for listening... isabella
Welcome Pete. Sorry you had the need to find this forum but so glad you did.
I agree that laughter is the best medicine ........ or if it's not really, the taste is way better
Isabella, I hope you find the answers tomorrow at your rheumy appointment.
I pray that you do not have WG but it would be good to actually have an answer.
I used to bite my tongue around my co-workers, you know those ones .....the ones that can't come in to work because they stubbed their little toe and it hurts to walk, or the ones that have a blocked nose ......... no worse, the ones that have a nose that wont stop running and they need to keep blowing and complaining at the same time.
These days I just say "I'll swap with you" or "welcome to our world".......they soon understood what I mean.
Take care both of you and remember to .........
Keep Smiling
Michelle
Live your life in a way that you wouldn't be ashamed to sell the family parrot to the town gossip - WILL ROGERS
Hey Pete. I'm just North of you in Delaware, well depending what suburb you live in. I'm going to second the suggestion of the Cleveland Clinic. That said OSU is a great hospital as well.
One question...is that 100 mg of CTX a day? That seems high to me.
~ Bob
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