Cellcept

[Chris G]

I saw my docs today, and they feel I need an additional drug to knock wg down - I agree because I didn't make it 6 months with the 1st round of rtx, before symptoms started creeping back. I'm to start cellcept - 1500 mg (working up to that, with a lower starting dose).

I'm scared!! My sister-in-law has been taking it for lupus and she was throwing it up!! I told her to try it with food, which I read here, might be ok. She no longer throws up, but still has bad stomach upset from it.

Could you all please share your experiences with it? Your dose? With or without food? Stomach upset or not?

Thanks guys and gals!

[Sangye]

I was on 2,000 mg/day for about 2.5 yrs, and on 3,000mg for a month or so. I didn't have any side effects at all other than some diarrhea. It was a pain, but not a deal-breaker. I took it with food.

Most people tolerate it just fine. The most common side effect is diarrhea, which can vary from mild to severe. If it's too severe they take you off of it.

Personally I prefer Cellcept to chemo. It's a targeted therapy without all the mutagenic and toxic side effects of chemo.

[Jaha]

Chris G,

I am currently on Cellcept 2000mg per day. I haven't noticed any side effects, but I just started it in Nov and had to go off it while I was on antibotics because of 2 bouts of infection and my doc said that I will remain on it while I'm doing the infusions of RTX.
Jana

[Chris G]

Thanks guys. Good info. I'm still dragging my feet. I haven't picked up the script yet. Not sure how to work it in my schedule - twice a day sounds like a real pain! I take most of my meds with food, and I don't think I'm supposed to take cellcept and other drugs at the same time. I don't want to eat MORE often! Ugh

[Sangye]

I don't remember cellcept interfering with any other meds. I took it with my morning meds and with dinner.

[elephant]

I take my cellcept with food. So far so good.