Tingling feet

[Carol]

Hi everyone
My tingling/numb/burning feet (Mononeuritis multiplex)have continued to be a big problem - probably the only problem except for tiredness two months after being diagnosed. The rheumatologist has decided after neuropathic testing(electric shocks through the nerves) that I need aggressive therapy. So I am to have IV cyclophosphamide treatment every 6 weeks to try to improve my feet. A bit scarey. Has anyone else had this nerve problem? I'd love to hear from you anywhere in the world. My other medication is Prednisolone and Imuran.

[rakpartridge@hotmail.co.u]

carol, I Also Have The Same Feeling In My Feet Since Coming Out Of Hospital With W.g. 5 Months Ago, I Was Told It Would Take Several Months Before It Might Get Better. So Yes I Do Now What You Are Going Through. roger.

[jola57]

I too know the feeling, I was diagnosed with WG November 2006. Given prednisone but not treated aggresively until a year later. In may 2007 I developed a dropped left foot with neuropathy of both left and right foot. After being given cytoxan for 6 months my feet are better, dropped foot is gone but neuropathy is still there. Total recovery is unlikely (but hopefully possible) Good luck with your feet
Jolanta

[Trish]

Hi Carol
I have suffered the same feet problems as you. Unfortunatley I had 6 months IV cyclophospamide and that was when my feet problems began. Cant say whether it was the cyclo or just wegeys taking a hold at the time. I have finished with Cyclo treatment and they have now put me on methotrexate which I have once a week. A matter of taking 5 pills at home. No side effects so far and my feet are a bit better. I can now wear nicer shoes to work and dont limp all the time. I have also had a traceotomy a couple of months ago as I found it too dificult to breath but thats another story. In a message to Lucy, Andrew mentions a drug called Lyrica for his feet problems so will look into this. All the best Carol and if you do have any success with your feet I would love to hear about it. Im looking forward to those long walks and bike rides that I used to do before my breathing and feet let me down.
Kind Regards
Trish

[RCOSSIO]

I too had the burning sensation and tingling feeling in my feet. I was given Lyrica 3x daily 50mg each and Vitamin B12 1x 100mg in June 2008. I was taken off Lyrica completely after 1-1/2 months...the feet felt fine except for some numbness, however nerve damage does takes time to heal...at least a year.

I am back on the Lyrica 1x daily for the nerve pain in my right ear.

If you can get Lyrica prescribe to you that would be great. The Vitamin B12 you can get over the counter.

Hope this helps!

[Trish]

Hi Rcossio
Thank you for that info, when I spoke about it to my rheumatologist he would look at me blankly as if I was the only one who suffered it! I have an appointment at the end of September with him so I will take your info and hopefully he will prescribe it for me. How long have you had never pain in your ear and has it caused any deafness?
I hope this isn't another of those ailments that us WGs patients have to look forward to.

Kind regard
Trish