Prolonged Subglottal Stenosis

[capabayan]

I just had my 3rd successful bronchoscopy to fix my subglottal stenosis... I have been blessed with an excellent ENT who specializes in treating WG patients with stenosis... but it's getting kind of discouraging. This is the third time I've had surgery (dilation, laser removal of granulomas, steroid injection in the trachea) within the last 7 months. Does it get any better??

I've also done some reading online about the treatment of stenosis. It sounds like, the more they go in and fix it, the more damage is done to soft tissue. That makes sense... but is this permanent damage? Anyone knowledgeable about this??

Btw - for anyone else in the near vicinity, the ENT is Lucinda Halstead at MUSC in Charleston. Definitely a two-thumbs-up recommendation!

[Gwenllian]

My Tracheal stenosis was TERRIBLE for years and years, but i have to say, after many dilatations and immuno suppression, my breathing is MUCH better.

The stenosis is still there, but I can certainly live with it like this.

I hope it improves for you toox

[CarolG]

What were your symptoms for the tracheal stenosis? I've been having something a choking sensation but not in my throat; more in the upper chest area. My rheumy just had me do another CT to check it out, awaiting results.