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Thread: Gluten Free Diet

  1. #1
    Join Date
    Jan 2010
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    Default Gluten Free Diet

    Do any of you have experience of a gluten free diet 'helping' with Wegeners?

    A friend of a friend who is a doctor who specialises in disease prevention through healthy nutrition suggested it. I'm not sure how exactly she thinks it would help though. I don't really want to try it as I am already vegan and don't want to restrict my diet further so thought I'd see what you guys thought!

    She also suggested high dosages of Vitamin D.

  2. #2
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    I heard of that too, but I don't want to restrict my diet too. I thought about trying it for a couple of months, but too busy trying to manage everything else. I think many of us need to get back to eating whole foods...baking a sweet potato, eating a orange, steamed broccoli, handful of walnuts, bowl of oatmeal with blueberries, ...sorry I love talking about food.
    Last edited by elephant; 05-05-2010 at 12:29 PM.

  3. #3
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    May 2010
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    Australia
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    Never thought of changing my diet . I did ask a imuneoligist once if I shoud avoide any foods and he said Mushrooms ? . I have avoided them since . loved mushrooms but stay clear of them now . I have had a few since but not many . I couldnt do the whole glutin free thing . love food to much

  4. #4
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    Jan 2010
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    hehee Elephant! Me too, sometimes I wish I could go back to my pre diagnosis days where I felt too ill to be bothered with food.

  5. #5
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    Avoiding gluten only helps if you are sensitive to gluten. If you are and continue to eat it, it's a chronic assault on the immune system. Autoimmune diseases have been linked to undiagnosed gluten sensitivity in some people-- enough that it's worth checking. The best way to check is avoid all gluten for at least 2 weeks. You have to be extremely careful not to have the slightest exposure. Check online for a complete list of foods to avoid. If you feel better after 2 weeks, you probably have a sensitivity. If not, probably not. Symptoms that may improve can be anything from post-nasal drip to joint pain to fatigue. Keep a daily journal of symptoms to help you.

    Elephant's suggestion of eating whole foods is excellent. Also, following an Anti-inflammatory diet really helps. It won't cure Wegs, but it can decrease many symptoms and possibly keep us from flaring.

  6. #6
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    Jan 2010
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    Thanks Sangye. Perhaps it is unnecessary for me as I don't have any noticeable symptoms. I got some anti-inflammatory diet info from a Wegener's diet forum.

    Do you think the vitamin D is necessary?

  7. #7
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    I might just try the gluten free diet for two weeks. I better start Monday, and see. I will let you guys know what I ate everyday and how I am doing. I know it will be fruits, veggies, gluten free bread. I will try it. I can't believe I just committed myself. I can always back out right??? Whole Foods store here I come.

  8. #8
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    LOL--Elephant, we all witnessed it, too.

    Double check an internet list of foods containing gluten. I'm always surprised by some of them on the list.

    Mandy--supplementing vitamin D is necessary for many people. Even if your blood work shows "normal" levels, it might be on the low side. There is strong correlation between low vitamin D levels and high amounts of pain. Also, vitamin D is protective against flu.

  9. #9
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    Yes, I will post what I ate and how I feel. Starting Monday. Mondays are always a good day to start your diet!

  10. #10
    Join Date
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    LOL-- the best day to start a diet is always any day but today.

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