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Thread: Losing toe nails.

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    drz's Avatar
    drz
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    Default Losing toe nails.

    The toe nails on my big toes are dying and coming loose. Can this be related Wegener's disease or side effect of treatment? I am currently on 12.5 mg of prednisone and have been tapering down from 70 mg over the past couple months. I am still on Cytoxan and have been for six months. current dosage is 75-100 mgs day with dosage alternating each day.

    I have neuropathy from diabetes and some problems with toe nails were present before diagnosis of Wegener's. The nails look discolored from a fungus but treatment prescribed by podiatrist didn't help any. They feel sensitive like an ingrown toe nail but a pedicure to trim nails and remove growth under nails didn't help relieve discomfort.

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    Jack's Avatar
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    The treatment for Wegener's leaves us very open to fungal infections. Coincidentally, one of my smaller toe nails became infected a few weeks ago (not something I have ever had before) and fell off. There must be a lot of it about!

    I believe that treatment can take up to 6 months to work so I must do something about it soon.
    Last edited by Jack; 10-21-2010 at 08:34 PM.
    Jack

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    Col 23 is offline Registered User
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    Hi drz
    I have had this for some time and also on one thumb and occassionally on a finger. I was checked for fungus and infection , none present. The nail lifts from the bed and goes black. The only products that have worked are diluted tee tree oil and Lozerol from the Pharmacy. An anti fungal treatment for ringworm also works. It is a very tedious thing to get rid of and you must reat it every day and keep your nails short. It cvan take up to six months with regular treatment to get rid of it. At the moment I have it on one thumb. I was also advised to avoid putting your hands in water as much as possible. Hope this is helpful.
    cheers Col 23

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    drz, I get the same thing. In my case it's caused by Vasculitis in the fingers and toes due to the small blood vessells not getting enough blood and oxygen. Very painful, very prone to infection. Keeping them warm helps with the discomfort. No way to cure them, but if you get open sores be careful to keep them clean and dry...
    Last edited by misskay; 10-21-2010 at 11:55 PM. Reason: spelling

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    Diabetis as you know are prone to severe infections of the feet. You don't want any toes amputated, so make sure your podiatrist looks at your feet regularly. Always check your feet to make sure there are no cuts. Sometimes Diabetics can't feel if they stubbed or cut their foot.
    Misskay is right.

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    drz--The others gave good advice. I'll add that this isn't a side effect of pred or ctx. I'm wondering if you have vasculitis affecting your toes but can't feel it due to diabetic neuropathy. Definitely a question for your Wegs doc.

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    drz's Avatar
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    Quote Originally Posted by Col 23 View Post
    Hi drz
    I have had this for some time and also on one thumb and occassionally on a finger. I was checked for fungus and infection , none present. The nail lifts from the bed and goes black. The only products that have worked are diluted tee tree oil and Lozerol from the Pharmacy. An anti fungal treatment for ringworm also works. It is a very tedious thing to get rid of and you must reat it every day and keep your nails short. It cvan take up to six months with regular treatment to get rid of it. At the moment I have it on one thumb. I was also advised to avoid putting your hands in water as much as possible. Hope this is helpful.
    cheers Col 23
    If no infection or fungus was present why does an antifungal treatment for ringworm help. I learned about several home remedies to treat fungus infections like soaking in vinegar diluted with water, Listerine, and even dark beer with some extra ingredients. but all require soaking twice a day for many months.

    Hope can one tell difference between fungus infection and vasculitis in toes?

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    elephant's Avatar
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    I would say a WG doc,Podiatrist, Vascular surgeon who has seen many of these cases.

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    I lost two nails in as many years. There is no fungus, just separation from nail bed and when bumped, they just fell off. No pain because of my neuropathy (at least it was good for this)
    they are growing back but both have huge half moons by the nail bed almost to the end of the nail, so I am not holding my breath that they will stay on.
    Jolanta

  10. #10
    Doug Guest

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    I've not suffered finger- or toenail loss, but the quality of my fingernails, toenails is different. The fingernails in particular are thinner, more brittle, with crosswise ridges and indentations. They look like a record of my health, which may be true, and may be frightening! Anyone know about these things? Sangye?

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