Trish asked me to post this on her behalf:
Hi Natalie
It is good to hear from someone else in NZ who has Wegeners. We are very similar in that I also started off with a bad flu and it occured in May 2006. It sounds like you have been through the mill it certainly is a
horrible disease but like everyone says we have to try to be postive. Im
sorry I have taken so long to reply I work on computers all day, and by night or weekends it is sometimes the last thing I want to do, mostly because of the pain in my eyes and sinises that I get from having to wear glasses. Something else that I picked up from this damn disease. I would like to hear from you and share stories.
I hope things arent too bad for you at the moment and things start to improve. I am down to 13mg but still on the methotrexate. I was hoping I could come off it at my last visit to the doc, but no such luck. Are you working Natalie and if so what do you do. What are your hobbies, Id love to hear from you. I havent been into the site for a while.
|