I think there is still a great deal unknown about the effects of Wegener's. Although I have not recently had a relapse, I have had constant medical problems since being diagnosed (20 years ago). It seems that there is always something new to be investigated, puzzle everyone, then, with luck, fade away. Only to be replaced by something else.
Many of these problems may well be side effects of all the medication I have to take, but I suspect that many are Wegener's symptoms. My latest problem is weight loss and considerable muscle loss in my legs. A real nuisance because it is making walking very painful, but none of the tests to date have indicated the cause of the problem.
|