Hi Gwenllian,
I was having a similar experience last year, and over the years I've suspected that people thought I was 'being over-imaginative' on a number of occasions.
Last year my renal consultant responded to my very similar symptoms by insisting that it wasn't even possible for me to be having a flare post transplant. Indeed, he went as far as to say to my face "You don't need a doctor: you need psychiatrist." Unfortunately, the vagueness of WG means that this is a quite common response.
I demanded that my GP refer me to the
Vasculitis Centre at Addenbrooke's . It was a long journey, but worth it, because the *actual specialists* there immediately agreed that a flare looked very likely and added MMF (Cellcept) to my meds. That seemed to work pretty well.
Stay tough - and believe you own body.
Sarah xx