[Jenny]

Hi I'm from Canada. I was diagnosed in April' 08. I'm taking cyclophosphamide and prednisone. I'm still not doing that great. It started in my right ear (October' 07), then my lung (March 08), gums, throat, skin and sinuses really quickly and had to be hospitalized almost died from the lung complication. My ear and sinuses are still pretty bothersome I also have facial paralysis on my right side, doctors don't know if it is the wegener's from the inflammation from my ear or Bell's Palsy. Anyone else have this? Also my heart beats really fast mostly around 130bpm without doing any physical activity and high blood pressure. My doctor doesn't seem too worried about it but I have read that WG can affect your heart too and want to know the symptoms of it before it is too late .

Thanks, Jenny