Hi Andrew
Yes I still have it in and will need to have it for approx a year. They are saying they need to get me into remission and then wait a while after that before they would be able to operate and put an internal tube into my airway, otherwise the WG might attach the affected area again. I was lucky I couldnt speak for the first 3 days but when they replaced my tube and gave me a speaking valve it worked wonderfully and my voice is the same except a little raspy (especially when I have been talking too much. I was worried I would have a robot voice. It isnt the most comfortable contraption to be wearing but it sure beats not breathing. How long did you have to wear yours and did it become second nature to you. I hate the way when I cough it makes duck whistle noises as the air is released or when I sit down sometimes it sounds like I have sat on a whooppy cushion (farting noises from my throat). Im hoping the coughing will subside as it is early days yet. Love to hear any info you have that you found would make it easier.
Cheers
Trish
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